The bill amends the Louisiana Sickle Cell Commission's membership structure, specifically detailing the qualifications and limitations for commission members. It establishes that the commission will consist of seventeen members, with a clear stipulation that no organization, entity, or individual can be a member unless explicitly mentioned in the bill. The governor will appoint thirteen members, subject to Senate confirmation, from various organizations and institutions that have a history of serving patients with sickle cell disease, including the Sickle Cell Center of Southern Louisiana, Children's Hospital in New Orleans, and several local sickle cell associations.

Additionally, the bill emphasizes the importance of historical and institutional knowledge in patient care by specifying the contributions of various organizations to the sickle cell community. For instance, it highlights that the Sickle Cell Center of Southern Louisiana has been providing care since 1979 and operates a lifespan clinic, while Children's Hospital is noted for its unique stem cell and gene therapies. The bill also includes provisions for appointing members from the Louisiana Department of Health, ensuring representation from individuals diagnosed with sickle cell disease and their families, as well as medical professionals involved in their care.

Statutes affected:
HB330 Original: 40:1(A)
HB330 Engrossed: 40:1(A)
HB330 Enrolled: 40:1(A)
HB330 Act 608: 40:1(A)