This bill establishes an advance universal newborn screening program to be administered by the Secretary of Health and Environment in Kansas. It mandates the implementation of an educational program for healthcare providers and the public regarding various conditions identified by the Secretary, including congenital hypothyroidism, galactosemia, and phenylketonuria. The bill also outlines the provision of recognized screening tests for these conditions, the establishment of a follow-up program for infants with abnormal screening results, and the maintenance of a registry for tracking cases. Additionally, it allows for the reimbursement of treatment services for diagnosed conditions, with specific provisions based on the income of the individuals responsible for the diagnosed child.

The bill amends existing laws, specifically K.S.A. 2024 Supp. 65-180, K.S.A. 65-181, and K.S.A. 65-183, to reflect these changes, including the deletion of references to "genetic diseases detectable with the same specimen" and the inclusion of "conditions identified by the secretary." It also establishes the Kansas newborn screening fund to support the program financially, with a provision for transferring funds necessary for the program's operation. The bill aims to enhance the health and welfare of newborns through comprehensive screening and support services while ensuring that the program is adequately funded and managed.

Statutes affected:
As introduced: 65-181, 65-180, 65-183