This bill establishes an advance universal newborn screening program to be administered by the Secretary of Health and Environment in Kansas. It mandates the implementation of an educational program for healthcare providers and the public regarding certain conditions identified by the Secretary, which include congenital hypothyroidism, galactosemia, and phenylketonuria. The bill also outlines the provision of recognized screening tests for these conditions, a follow-up program for infants with abnormal results, and the maintenance of a registry for tracking cases. Additionally, it allows for the reimbursement of treatment services for diagnosed conditions, with specific provisions based on the income of the individuals responsible for the diagnosed infants.

The bill amends existing laws to remove references to "genetic diseases detectable with the same specimen" and instead focuses on "conditions identified by the secretary." It also repeals previous sections of law that are no longer applicable. The Kansas newborn screening fund is established to support the program, with provisions for the transfer of funds to ensure its operation. The Secretary is tasked with adopting rules and regulations to determine eligibility for reimbursement and to ensure the efficacy of the newborn screening program. Overall, the bill aims to enhance the health and welfare of newborns through comprehensive screening and support services.

Statutes affected:
As introduced: 65-181, 65-180, 65-183