The bill establishes an advance universal newborn screening program to be administered by the Secretary of Health and Environment in Kansas. It mandates the implementation of an educational program for healthcare providers and the public regarding various conditions identified by the Secretary, including congenital hypothyroidism, galactosemia, and phenylketonuria. The bill also outlines the provision of recognized screening tests for these conditions, a follow-up program for infants with abnormal results, and the maintenance of a registry for tracking cases. Additionally, it allows for the reimbursement of treatment services for diagnosed conditions, with specific provisions based on the income of the individuals responsible for the diagnosed infants.

Key amendments include the removal of specific references to "genetic diseases detectable with the same specimen" and the inclusion of broader terms such as "conditions identified by the secretary." The bill also establishes the Kansas newborn screening fund to support the program financially, with a provision for transferring funds from the medical assistance fee fund to ensure the program's sustainability. The Secretary is tasked with adopting rules and regulations to determine eligibility for state assistance and to periodically review the program's efficacy and cost-effectiveness. The existing sections of K.S.A. 65-181 and 65-183 are repealed, streamlining the legal framework surrounding newborn screening in Kansas.

Statutes affected:
As introduced: 65-181, 65-180, 65-183