This bill mandates the Kansas Department of Health and Environment to submit an annual report to the relevant legislative committees regarding the state's newborn screening program, starting on April 1, 2026. The report will be developed in collaboration with the department's newborn screening staff, the Kansas newborn screening advisory council, and advocacy organizations focused on disabilities and rare diseases. The report will cover several key areas, including the disorders currently screened, new disorders under consideration for inclusion along with their funding needs, disorders that were considered but not recommended for inclusion in the past year, and any delays in the evaluation process.
The bill specifies the contents of the report, which must include explanations for any exclusions of disorders and reasons for not reevaluating certain disorders within the past year. This structured approach aims to enhance transparency and accountability in the newborn screening program, ensuring that stakeholders are informed about the status and developments of the program. The act will take effect upon its publication in the statute book.