This bill mandates the Kansas Department of Health and Environment to submit an annual report to the relevant legislative committees regarding the state's newborn screening program, starting on April 1, 2026. The report will be developed in collaboration with the department's newborn screening staff, the Kansas newborn screening advisory council, and advocacy organizations focused on disabilities and rare diseases. The report must include details about the disorders currently screened, new disorders under consideration, those not recommended for inclusion, disorders that do not require reevaluation, and any delays in the evaluation process.
The bill specifies the contents of the report, ensuring transparency and accountability in the newborn screening program. It aims to provide lawmakers with comprehensive information on the program's effectiveness and areas for improvement, thereby enhancing the health outcomes for newborns in Kansas. The act will take effect upon its publication in the statute book.