This bill mandates the Kansas Department of Health and Environment to submit an annual report to the relevant legislative committees regarding the state's newborn screening program, starting on April 1, 2026. The report will be developed in collaboration with the department's newborn screening staff, the Kansas newborn screening advisory council, and advocacy organizations focused on disabilities and rare diseases. The report must include details about the disorders currently screened, new disorders under consideration, those that were evaluated but not recommended for inclusion, and any delays in the evaluation process.
The bill specifies the contents of the report, which will cover the disorders currently screened, new recommendations along with funding needs, explanations for exclusions of certain disorders, and reasons for any delays in the evaluation process. This structured reporting aims to enhance transparency and accountability in the newborn screening program, ensuring that stakeholders are informed about its status and developments.