The Florida House of Representatives has introduced House Resolution HR 8039, which designates June 9, 2026, as "FSGS Awareness Day" in the state. This resolution highlights the significant prevalence of chronic kidney disease in Florida, where 30 percent of Medicare beneficiaries are affected, the highest rate in the nation. Focal segmental glomerulosclerosis (FSGS) is identified as a severe condition that leads to kidney scarring and can result in kidney failure, requiring dialysis or transplantation for many patients. The resolution emphasizes the urgency of raising awareness about FSGS, which can progress rapidly and has a high recurrence rate even after transplantation.
The resolution also acknowledges the efforts made to support research and awareness for FSGS, particularly through events like the Tampa Pig Jig, which has raised millions for research since its inception in 2011. This event, which attracts around 10,000 attendees annually, was initiated by friends of a patient diagnosed with FSGS and aims to find a cure for this rare kidney disease. By declaring June 9, 2026, as "FSGS Awareness Day," the Florida House of Representatives seeks to provide support and inspiration to those affected by the disease and to promote better diagnosis and treatment options for patients and their families.