The Florida House of Representatives has introduced House Resolution HR 8033, which designates February 28, 2026, as "Rare Disease Day" in the state. This resolution highlights the significant impact of rare diseases, which collectively affect nearly 30 million Americans, including a substantial number of children. It acknowledges the challenges faced by individuals and families dealing with rare diseases, such as delays in diagnosis, difficulties in accessing medical expertise, and limited treatment options, as many rare diseases lack approved therapies.

The resolution also notes the establishment of the Rare Disease Advisory Council in Florida, which aims to give a voice to those affected by rare diseases. Additionally, it recognizes the efforts of the Orphan Drug Act, supported by Florida Representative Gus Bilirakis, in promoting the development of biopharmaceuticals for rare diseases. By designating a specific day to raise awareness, the resolution seeks to foster understanding and support for the rare disease community in Florida.