The bill establishes a statewide Parkinson's disease registry in Florida, requiring physicians and advanced practice registered nurses to report specific information regarding patients diagnosed with Parkinson's disease or atypical parkinsonism. The reporting requirement will take effect on January 1, 2027, and includes nationally recognized performance measures. Additionally, the bill provides limited liability protections for healthcare providers who submit this information to the registry. The Florida Institute for Parkinson's Disease at the University of South Florida is tasked with creating and maintaining the registry, as well as a dedicated website for public access to information about the registry and related research.
The bill also revises the structure and membership of the Parkinson's Disease Research Board, which will now include one member appointed by the President of the Senate and one by the Speaker of the House of Representatives. The terms for board members have been changed from four years to three years, and the board is required to issue an annual report detailing research projects, community outreach initiatives, and updates on the incidence and prevalence of Parkinson's disease in the state. The act is set to take effect on July 1, 2026.
Statutes affected: H 1443 Filed: 1004.4352
H 1443 c1: 1004.4352