This bill amends section 1004.4352 of the Florida Statutes to establish an exemption from public records requirements for certain records and personal identifying information submitted to the Parkinson's Disease Registry. Specifically, it adds a new paragraph (f) to subsection (5), declaring that all records and personal identifying information related to individuals diagnosed with or treated for Parkinson's disease are confidential and exempt from public disclosure laws, with specific conditions for release. These conditions include obtaining written consent from the individuals involved, allowing the department or consortium to contact individuals for epidemiological purposes without further disclosing confidential information, and permitting data-sharing agreements with governmental entities for medical or scientific research, provided confidentiality is maintained.
Additionally, the bill includes a statement of public necessity, asserting that the confidentiality of these records is essential for the effective implementation of the Parkinson's Disease Registry and to protect the privacy rights of affected individuals. It emphasizes that the disclosure of such information could violate federal patient privacy laws, such as the Health Insurance Portability and Accountability Act of 1996. The bill is subject to the Open Government Sunset Review Act and will be repealed on October 2, 2031, unless the Legislature reviews and reenacts it. The act will take effect contingent upon the passage of related legislation in the same session.