The bill, titled "Mattie's Law," amends section 383.14 of the Florida Statutes to enhance newborn screening procedures. It mandates that, starting January 1, 2027, all newborns in Florida must be screened for biliary atresia, in addition to existing requirements for testing for metabolic disorders and other hereditary conditions. The Department of Health is required to consult with the Genetics and Newborn Screening Advisory Council before adopting any rules related to screening methods and follow-up procedures.

Furthermore, the bill stipulates that by October 1, 2026, the Department of Health must implement a statewide public health education campaign aimed at raising awareness about biliary atresia. This campaign will focus on educating new and expecting parents about the symptoms and importance of early diagnosis, as well as providing guidance to healthcare providers on identifying the condition and the risks associated with delayed treatment. The effective date for this act is set for July 1, 2026.

Statutes affected:
H 1335 Filed: 383.14