The bill establishes the Neurofibromatosis Disease Grant Program within the Florida Department of Health, aimed at advancing research and finding cures for neurofibromatosis through competitive grants. It mandates an annual appropriation of $5 million from the Legislature to fund scientific and clinical research, with grant applications open to universities and research institutes in the state. The program emphasizes collaboration among institutions and researchers, and grants will be awarded based on scientific merit through a peer-reviewed process, ensuring equal access for all qualified investigators.
Additionally, the bill outlines the roles of the Rare Disease Advisory Council and peer review panels in evaluating grant applications, requiring them to adhere to strict ethical guidelines and conflict of interest policies. Members of these bodies are prohibited from participating in discussions or decisions regarding proposals from entities they are associated with. The bill also allows for unspent funds from the program to be carried forward for up to five years, ensuring that committed resources can be utilized effectively. The act is set to take effect on July 1, 2026.