The Florida House of Representatives has introduced House Resolution HR 8079, which designates February 28, 2025, as "Rare Disease Day" in the state. This resolution highlights the significance of rare diseases, which collectively impact nearly 30 million Americans, including a substantial number of children. It acknowledges the challenges faced by individuals and families affected by these conditions, such as delays in diagnosis, difficulties in accessing medical expertise, and limited treatment options.
The resolution also notes the establishment of the Rare Disease Advisory Council in Florida, which aims to give a voice to those affected by rare diseases. Furthermore, it recognizes the efforts of the Orphan Drug Act, supported by Florida Representative Gus Bilirakis, in promoting the development of biopharmaceuticals for treating rare diseases. By proclaiming Rare Disease Day, the resolution seeks to raise awareness and foster support for the millions of Americans living with these conditions.