The Florida House of Representatives has introduced House Resolution HR 8061, which designates April 16, 2025, as "Wolf-Hirschhorn/4p-Syndrome Awareness Day" in the state. This resolution highlights the importance of raising awareness about Wolf-Hirschhorn syndrome, a genetic disorder resulting from a partial deletion of chromosome 4. The condition affects approximately one in 50,000 births and is characterized by weak muscle tone and developmental delays in children, who may face various medical complications while striving for a normal childhood.
The resolution emphasizes the need for effective diagnostic screenings, early interventions, and increased knowledge about 4p-syndrome to support affected individuals and their families. It acknowledges the ongoing research and efforts by medical professionals in Florida to diagnose, study, and treat the symptoms associated with this rare genetic disorder. By designating a specific day for awareness, the resolution aims to foster understanding and support for those impacted by Wolf-Hirschhorn syndrome.