Senate Bill No. 1540 aims to enhance the responsibilities of the existing working group focused on pediatric hospice services in Connecticut. The bill modifies the current duties of the working group, which were initially limited to reviewing existing services, making recommendations for appropriate service levels, and evaluating payment options. The new provisions require the working group to develop recommendations for establishing a Children's Health, Advocacy, Management, and Palliative Care program, which will include a Pediatric Palliative and Hospice Care Center of Excellence pilot program. This expanded scope will necessitate recommendations on appropriations, operational requirements, educational standards for nursing staff, and any necessary licensing or certification for the pilot program.
Key changes in the bill include the replacement of the existing responsibilities with a new timeline, specifying that the working group must complete its initial duties by March 1, 2025, and then focus on the new program until June 30, 2026. Additionally, the bill mandates that the chairpersons of the working group schedule a meeting within 30 days of the bill's passage to initiate work on these new responsibilities. The working group is also required to report its findings and recommendations to the Public Health Committee by March 1, 2026. Overall, the bill seeks to improve pediatric hospice care in the state by establishing a structured program and pilot initiative.