General Assembly Committee Bill No. 175, introduced to the Committee on PUBLIC HEALTH, proposes an act concerning funds for the Rare Disease Advisory Council. The bill includes an appropriation of fifty thousand dollars to the Department of Public Health from the General Fund for the fiscal year ending June 30, 2025. This appropriation is specifically for the operations of the Rare Disease Advisory Council as established by section 19a-6t of the general statutes, which is also amended by this act.

The bill also includes a substitution for subsection (f) of section 19a-6t of the general statutes, effective from passage. The amendment allows the Rare Disease Advisory Council to identify public, private, and other available funding sources, and to accept and utilize funds from these sources to implement the provisions of the section. This change is intended to provide the council with greater flexibility in funding its operations. The act specifies that these changes will take effect on July 1, 2024, for Section 1, and from passage for Section 2, amending section 19a-6t(f).