Introduced by Senator Padilla (Coauthors: Senators Becker, Blakespear, Ochoa Bogh, Seyarto, and Umberg) (Coauthors: Assembly Members Alanis, Boerner, and Zbur)
March 19, 2026
Relative to GM1 Gangliosidosis Awareness Day.
LEGISLATIVE COUNSEL'S DIGEST
SCR 148, as introduced, Padilla.
GM1 Gangliosidosis Awareness Day.
This measure would declare May 23, 2026, as GM1 Gangliosidosis Awareness Day in California.
Digest Key
Fiscal Committee:
NO
Bill Text
WHEREAS, GM1 Gangliosidosis is a rare inherited disease that results in neurodegeneration and a progressive loss of abilities until death, leaving children, adolescents, and adults impaired with significant physical and developmental disabilities; and
WHEREAS, GM1 Gangliosidosis is severely underdiagnosed and misdiagnosed and occurs in only one in every 100,000 to 200,000 live births; and
WHEREAS, Lack of public awareness and visibility of GM1 Gangliosidosis contributes to underdiagnosis and difficulties in accessing specialized services and proper rehabilitation and support; and
WHEREAS, Early diagnosis of GM1 Gangliosidosis is important to ensure timely management of clinical complications, genetic counseling, and, when available, treatment and therapeutic remedies; and
WHEREAS, The goal is to raise awareness and increase the accurate and timely diagnosis of this rare inherited lysosomal disorder known as GM1 Gangliosidosis; now, therefore, be it
Resolved by the Senate of the State of California, the Assembly thereof concurring, That the Legislature declares May 23, 2026, as GM1 Gangliosidosis Awareness Day in California; and be it further
Resolved, That the Secretary of the Senate transmit copies of this resolution to the author for appropriate distribution.