This bill proposes updates to the current statutes regarding the childhood cancer and rare childhood disease research fund by expanding its funding sources and establishing a new commission. The current law, which establishes the fund and outlines its administration, will be amended to include additional funding sources such as legislative appropriations, gifts, donations, and federal grants. The bill also modifies the percentage of fund usage for administration costs and specifies the reimbursement amount for implementation fees.

Furthermore, the bill introduces the childhood cancer and rare childhood disease research commission, which will consist of appointed members, including survivors and health professionals. This commission will be responsible for awarding grants to nonprofit organizations engaged in relevant research, ensuring that funds are used appropriately. Additional provisions include terms for commission members, conflict of interest guidelines, and annual reporting requirements to legislative committees. Overall, the bill aims to enhance the structure and effectiveness of funding for research in pediatric cancer and rare diseases.

Statutes affected:
Introduced Version: 36-121, 36-121.01, 28-2442, 35-190