The proposed bill would establish the Arizona Rare Disease Advisory Council (RDAC) within the Arizona Department of Health Services, which is a new addition to current statutes. The council will consist of diverse stakeholders, including healthcare professionals, patients, caregivers, and representatives from relevant organizations, all appointed by the governor. The bill mandates that the council meet regularly, conduct public hearings, and maintain a public website to ensure transparency. Members will serve staggered three-year terms without compensation but can receive expense reimbursements.

In addition to the establishment of the RDAC, the bill includes provisions for the council to develop policy recommendations, submit an annual report to the Governor and legislative committees, and solicit gifts and grants to support its operations. This new framework aims to enhance public awareness and legislative understanding of the challenges faced by individuals with rare diseases in Arizona, while ensuring that the council operates transparently and inclusively.

Statutes affected:
Introduced Version: 36-142.01