The proposed bill would establish the Rare Disease Advisory Council (RDAC) within the Department of Health Services (DHS) to provide guidance and recommendations for individuals living with rare diseases in Arizona. This new council would consist of diverse members from healthcare, academia, and patient advocacy, ensuring representation of the state's geographic and population diversity. The bill mandates a transparent appointment process and outlines the council's responsibilities, including conducting public hearings, providing legislative testimony, and submitting an annual report to the Governor and legislative committees.

In addition to the establishment of the council, the bill introduces several new provisions, such as the development of a public website, opportunities for public input, and the ability to solicit donations for the council's operations. It specifies the terms of service for council members and emphasizes the council's role in improving access to care and treatment for rare disease patients. Overall, the bill aims to enhance support and resources for individuals affected by rare diseases in Arizona, while current statutes remain unchanged.

Statutes affected:
Introduced Version: 36-142.01
House Engrossed Version: 36-142.01
Senate Engrossed Version: 36-142.01
Chaptered Version: 36-142.01