The proposed bill would establish the Rare Disease Advisory Council (RDAC) within the Department of Health Services (DHS), which is a new addition to current statutes. The council will consist of diverse members from healthcare, academia, and patient advocacy, all appointed by legislative leaders and the governor, ensuring representation of Arizona's geographic and population diversity. The bill mandates that council members be full-time residents of Arizona and outlines their responsibilities, including conducting public hearings, providing testimony on legislation, and submitting an annual report to the Governor and legislative committees.

In addition to the establishment of the RDAC, the bill introduces several operational requirements, such as maintaining a public website, conducting public engagement, and the ability to solicit donations for its activities. The initial terms for council members will be staggered to ensure continuity, and the council will evaluate healthcare coverage for rare disease treatments and identify educational resources for healthcare providers. Overall, the bill aims to enhance support and resources for individuals affected by rare diseases in Arizona, while current statutes remain unchanged.

Statutes affected:
Introduced Version: 36-142.01
House Engrossed Version: 36-142.01
Senate Engrossed Version: 36-142.01
Chaptered Version: 36-142.01