The proposed bill, HB2758, establishes the Arizona Rare Disease Advisory Council (RDAC) within the Arizona Department of Health Services, aimed at addressing the needs of individuals with rare diseases. The council will consist of diverse members appointed by the governor, including representatives from various sectors such as academic research, healthcare, and patient organizations. Key responsibilities include conducting public hearings, providing testimony on relevant legislation, and making policy recommendations to improve access to care and treatment for rare disease patients.

Significant changes from current law include the formal creation of the RDAC, structured membership requirements, and specific activities such as soliciting public input and submitting annual reports to the governor and legislative committees. The bill also introduces a transparent appointment process for council members, mandates regular meetings, and allows the council to solicit funding for its operations, enhancing its capacity to support the rare disease community in Arizona.

Statutes affected:
Introduced Version: 36-142.01
House Engrossed Version: 36-142.01