The proposed bill establishes the Arkansas Rare Disease Advisory Council, which will operate within the Department of Health. This council is tasked with addressing the needs of individuals affected by rare diseases, defined as conditions impacting fewer than 200,000 people in the U.S. The council will consist of eight members, including representatives from academic research institutions, the Department of Human Services, geneticists, patients, caregivers, and professionals from the scientific and healthcare communities. The council is expected to meet regularly, initially once a month, to provide guidance, conduct public hearings, and develop policy recommendations aimed at improving access to care and treatment for rare disease patients.

Additionally, the council will be responsible for submitting annual reports to the Governor and the Legislative Council, detailing its activities, funding status, and recommendations for addressing the needs of those living with rare diseases. The council will also have the authority to solicit funds to support its operations and will be required to report on its funding sources. This initiative aims to enhance public awareness, improve healthcare policies, and foster collaboration among stakeholders to better serve the rare disease community in Arkansas.