The proposed bill establishes the Arkansas Rare Disease Advisory Council, which will be created within the Department of Health. This council will consist of eight members, including representatives from academic research institutions, the Department of Human Services, geneticists, patients with rare diseases, caregivers, and professionals from the scientific and healthcare communities. The council aims to address the challenges faced by individuals with rare diseases, such as delays in diagnosis and access to treatment, by providing guidance, conducting public hearings, and making policy recommendations to improve healthcare access and quality for these patients.

The council will have various powers and duties, including educating the public and government entities about the needs of rare disease patients, evaluating the Arkansas Medicaid Program, and publishing resources related to rare diseases. Additionally, the council is required to submit annual reports to the Governor and the Legislative Council detailing its activities, funding status, and recommendations for addressing the needs of individuals with rare diseases. The council will also have the ability to solicit funds to support its operations and ensure its effectiveness in advocating for this vulnerable population.