The resolution proclaims May 2025 as Myositis Awareness Month in the state of Alaska, highlighting the impact of myositis, a group of rare autoimmune diseases that cause muscle inflammation and weakness. It emphasizes that nearly one in ten Americans is affected by rare diseases, including myositis, which can lead to debilitating symptoms and complications, significantly reducing the quality of life and life expectancy for those affected. The resolution also points out the challenges in diagnosing and treating myositis, as well as the need for more research to better understand the disease and develop effective treatments.
In support of this initiative, the resolution encourages Alaskans to come together to learn about myositis, its symptoms, and the various types of the disease. It calls for community support for individuals and families impacted by myositis, promoting greater awareness of these rare diseases. The Myositis Association, which advocates for patients and focuses on education and research, is organizing a nationwide observance for Myositis Awareness Month in May 2025, further underscoring the importance of this initiative.